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Here I would love to share with you our travels and adventures as international mushroom consultants. MEMOIRS about husband Pieter Vedder, who was a SCIENTIFIC PIONEER in Mushroom Cultivation Education. His practical handbook is in 9 languages and is called the MUSHROOM BIBLE: https://mariettesbacktobasics.blogspot.com/2020/08/modern-mushroom-growing-2020-harvesting.html
Showing posts with label Chronic Kidney Disease. Show all posts
Showing posts with label Chronic Kidney Disease. Show all posts

Wednesday, July 26, 2023

In Memory of my BEST Role Model EVER

 On July 27 of 1969, I lost one of my most favorite people...
Heeroom or Lord Uncle as we respectfully called him.
In my previous post I did already introduce him: {March 14, Written Life Message for me by my Favorite Great-Uncle}
At the age of twelve, he began his gymnastic studies on September 27, 1915 in the mission house Saint Willibrord in Uden. Just two months after he'd lost his Dad who passed away at age 47...
On September 8, 1923, he was dressed as a novice in the mission house Saint Lambertus in Helvoirt. There he also took his first Vows on September 8, 1925. After the novitiate and philosophy, he left for Teteringen in 1926, to the mission house Saint Francis Xavier for the four years of theology. He took the Eternal Vows on September 8, 1928. He was ordained priest by Monsignor Petrus Hopmans, bishop of Breda on February 3, 1929.
On October 12 of that year he left for Rome for higher studies at the Gregoriana and obtained the doctorate in canon law in two years. Back in Teteringen on July 29, 1931, he began teaching morality and law. Overworked, he had to give up his teaching post after four years. He goes to seek peace in Soesterberg, first as an assistant in the parish of Hamersveld. Later he was able to teach Greek.
Father Jan Nelissen on his horse in Timor, Indonesia
(NVC March 23) In the Limburg Illustration of 1929 there was this photo of neomist Nelissen with his family. To the left of mother Nelissen is Dean Creemers. To the right of Father Nelissen (with white choir shirt) chaplain Leesens can still be seen.
Limburger Koerier, April 4, 1929 (Limburger Courier)
Horst,—First Mass. On Easter Day, March 31, the First Mass was celebrated here in the parish Church of St. Lambertus by your Reverence Father J. Nelissen. Preceded by the harmony (orchestration), which for the first time helped to grace such a feast, the newly ordained priest was picked up at the presbytery by brides, shepherds and the clergy of the parish, including Mgr. Hoogers, Ap. Prefect in China, who is currently staying here. The fest ceremony was held by Father v.d. Laar from the Mission House in Uden. After the solemn high mass, the youthful priest was led with the same procession to the parental home, where an appropriate verse was said by one of the brides, after which the neomist addressed a word of thanks to all and gave his first priestly blessing.
Heeroom with family on March 31, 1929 when he did his first Holy Mass in his home town of Horst.
Second row from top his older brother Handrie is seen next to him and his Mother, widow since Heeroom was 12 (my Dad's maternal Grandmother wears a lace toer or poffer), and another Priest. Dad's eldest sister (as a bride) and Dad's Mom, sister from Heeroom. Dad's first cousin Piet Poels to the right with his wooden leg.
Heeroom is holding his hands on the shoulder of Dad's younger sister Nel (as a bride) and the little one next to her is Dien, another of Dad's first cousin I guess.
Seated left to right is Dad's younger brother Jeu and first cousin Jan Poels, Hermans, my Dad with his folded hands, Dad's younger brother Jack and first cousin Nel Poels.
Standing in back is Aunt Anna & Uncle Lei Nelissen, Aunt Ciska (wife of Uncle Handrie), Aunt Bertha (Nelissen), Aunt Anna (Nelissen), Uncle Louis, Dad's Father, Uncle Leonards & Aunt Marie (Nelissen).
September 20, 1938 departure to Timor, Indonesia as a missionary
In memory of my departure to the Mission of Timor
September 1938
P. Jan Nelissen S.V.D. (Society of the Divine Word).
Farewell of all Steyler Missionaries Autumn 1938 as they're sent off into their Mission
Heeroom is 2nd row from bottom, 14th
All names being mentioned here from bottom up and from left to right.
Mooi Limburg 24 September, 1938
Beautiful Limburg published it on September 24, 1938:
Two Missionaries from Horst left this month for their Mission station on the small Sunda Islands. Above the Reverend Father Vostermans S.V.D.; below the Reverend Father Dr. J. Nelissen S.V.D. left for Timor (Indonesia) on September 20.
Yes, on September 20, 1938 it was departure from Antwerp, Belgium on the 'Coburg' a freight ship, for Timor, Indonesia.
He ended up in the station of Lahoeroes. 
After the invasion of the Japanese, all Dutch missionaries from Timor were interned on May 24, 1942 in Atambua and transferred to a camp at Makassar on Sulawesi in early September.
They were first able to return to Timor on November 18, 1945—3.5 years later...
Het Geheugen ←click link
No. 5: Cemetery under the mango (Kali Bodjo January 1945).
After the dysentery epidemic.

Found in a blog post, written by Father Jan Van Zeeland SVD this:
Father Jan Nelissen SVD writes on October 30, 1945: "In the cemetery of Kali Bodjo, under a mango tree, are buried fathers Jacob de Bruin, Henk Greuter, Antoon Hinke, Willem Martens, Leo van Well and brother Crispinus de Wilde".
Het Geheugen ←click link
No. 6: Entrance in our barack of block IV in Kali Bodjo: a bamboo construction, with lines of laundry inside: museon omniversum ←click link
No. 10: 2 Baracks in Kali Bodjo. Little street between block 5 and 6. February 1945: museon omniversum ←click link
Father Jan Nelissen to the right in 1947 in Lahoeroes, Timor/Indonesia

Jan Nelissen arrives on leave in The Netherlands on March 24, 1948 and leaves for Timor on April 27, 1949 from Rotterdam with the passenger ship m.s. 'Sibajak'.
Meanwhile he did marry my Parents on Saturday, February 26, 1949. 
Second departure to Timor on April 21, 1949

Jan Nelissen did not only work in ordinary soul care. He participated in the administration of the region and from 1957 was spiritual leader of the minor seminary of Lalian. 
It is currently impossible to determine which mission stations he had due to a lack of data. In any case, he was pastor in Kupang from 1962 to 1966. Together with Father Cor Kooy, also from Timor, Jan Nelissen lands at Schiphol on November 30, 1962.
That is when he wrote Life Message for me in my poetry album on March 14, 1963.

In an informative Pdf by Van Klinken The Making of Middle Indonesia: ←(click on link) I found the following on page 211:
'If some time I were to tell you to kill the Catholic priest would you do it?³
³ Interview with Eleanor Toma, Buraen, 21 June 2009. This could refer to the then 65 year old SVD priest Johann Nelissen.

The above is quite shocking to read!
July 27, 1969 in Manila, Philippines
Father Dr. Sjang Nelissen SVD

Petrus Johannes Hubertus Nelissen was born in Horst 11 June 1903. After studying in Uden, Helvoirt and Teteringen, he was ordained a priest on 3 February 1929. Study in canon law in Rome complemented his education. As a professor in Teteringen he trained missionaries, but he asked too much of his strength and was only able to fulfill that function for four years. In 1938 he left for Indonesia and was a missionary in Timor until his death; in all kinds of positions — pastor, spiritual director at the minor seminary, leader in the Timor region, advisor to several bishops — he gave his best efforts. The last work that called him to Manila was also for the mission, which he served with all his strength, meticulousness, devotion to duty, and priestly devotion.

We pray that the Lord may lead this quiet worker, who did not allow himself rest, to find peace in His Kingdom.

And then suddenly this working life comes to an end.
At the request of the General Chapter, Jan left for the Philippines as a member of the Legal Committee to prepare a new mission statute. He arrived in Tagatay, 60 km from Manila, on July 12. He did not look well and complained about pain in the kidney area. He was taken to Lourdes Hospital in Manila, a hospital of our Blue Sisters (SSpS). It was not possible to remove a large stone by natural means.
Surgery was necessary: a kidney did not work or hardly worked because of stones. On Saturday, July 27, 1969, the day he was to be operated on, he died suddenly. "Because his kidneys were no longer working properly, the whole body was gradually poisoned and his heart, which was already not strong, could no longer process it" (Father Wim Vergoossen S.V.D, SVD-niews nr. 235, p. 9).
"I was standing next to his bed in the last moments and he could only shout twice: "Oh, my God" and then a little later: "Pray for me". 
He died at ten o'clock in the morning. 
Later we heard that Father Nelissen had died of pulmonary embolism (Letter from Father Jos Diaz Viera S.V.D.).
Because it was Saturday, he was being buried the same day on the cemetery of our Mission House in Manila. On Sunday there were 8 Masses in that Church!
In the Seminary chapel with the sisters from the island of Flores/Indonesia, priest and Dutch Ambassador family
Dad showed me these photos in 2019 with text on back, explaining.
Coffin still open and Florinese sisters, Father and Family of Dutch Ambassador gave him the last salute...
On the way to the cemetery and the celebrant was me... (wish he'd filled his name!).
At the cemetery Christ the King, Manila
Before the tomb was closed.
A family of the Dutch Ambassador in Manila was there.

R.I.P.
ONE DAY WE WILL MEET AGAIN!

With lots of respect, your great–niece 💞


Related links:
{My OPA - GRANDDADDY} | Previous post by me also showing things from Heeroom that I still keep!

Tuesday, March 14, 2023

SPRING in Our Garden — Post Accident

 This year's beautiful spring happens without me being IN it...
Can't walk, cannot go outside so Pieter captured it for me on my iPhone.
Hard to imagine what a driver without LOOKING can cause to another human being's life!
Our entire household is affected.
An elderly husband becomes the care taker...
Our kitties are unsettled...
Needing assistance with laundry and making the bed and on and on.
A very painful and also costly thing.
Needing a private driver to go to places where I used to drive.
On and on.
For missing the spring flowers, dear friend sent these on February 23, for enjoying indoors...
From my bed, I could see through the balcony door our Red bud Cercis Canadensis blooming on February 25.
Sending Pieter with my iPhone to capture them for me...
BUT my Pieter does NOT see the pink flowers due to being color blind!
This photo shows the wood trail below, that Pieter did newly built while I was in Limburg, The Netherlands one final time...
In front of our garage is this stunning Azalea pot plant, also on February 25.
Heavenly Azaleas...
Those stamens are so pretty!
Also on February 25th a sweet bouquet delivered by some kids from our Church and one street down from us.
You also see our pansies in our fiberglass window boxes happily blooming and more pot plants on the patio that bloom.

At least for me SOME spring flowers that I can enjoy without being outdoors...
My ugly rash and itch has subsided, a nasty side affect from the Medrol Dosepak, to reduce the swelling.
The swelling has gone down and cuts are healing with scabs formed.
My left leg hurts most around knee and ankle, where it is so severely cut and bruised aside from the Proxima fibula being fractured.
My calf is extremely tender and painful to the touch—hard to get any decent sleep with it and my right leg with the knee fracture and knee immobilizer.
BUT my nasty night sweats are also gone it seems—making progress!
Short legged and chunky Speckie girl on February 27, 2022...

Yesterday, our youngest senior kitty of 13, Speckie came home from the Animal Clinic after 3 nights, where Pieter brought her on Friday morning.
She was very sick.
Turned out after some blood work that her kidneys are not shutting down but in bad shape — just like mine. She also had a bacterial infection and got antibiotics and fluids.
Let's hope her Chronic Kidney Disease does not progress too fast...

Thanks for all your comments and prayers.

Monday, February 13, 2023

Happy Saint Valentine's Day!

This is a photo, taken on Friday, February 14, 2014 on Saint Valentine's Day when we were in The Netherlands and visiting Mom during her long hours of Dialysis. 
We did visit her 5 times during dialysis, one afternoon we missed — as we were visiting a 1st cousin—but that was when Dad was with her.
Mom has been a great role model all her life and I pray that I too will remain in such high spirits till the end of my CKD.
Oh, Mom so enjoyed our visits...

Happy Saint Valentine's Day to all of my readers! 

Thursday, February 9, 2023

Heart and Kidney Update after Hyperkalemia

 The week before Christmas was the worst one for me...
Suddenly got so weak and sick—vomiting even after three sips of water!
SO, I learned to lay low and REST and pray.
Because I still wanted to make it to Florida—where I'd booked us already in October—those 7 free nights for points.
And YES, I did make it to drive to Florida on December 26, and I only needed REST, vitamin D from swimming, walking and biking.
Eating healthy and finding my way out of this.
Well, my nephrologist had SHOCKED me on December 19, when he delivered the news that from 28% kidney function in June, now it only was 25%... and I had a heart murmur!
~
While I was sick, I called my nephrologist's office twice but no person on the line!
A nurse on a recording and she never bothered to call me back.
But I started analyzing things on my own and learned a LOT.
This by the way is me on the scale before breakfast, on my B'day and in my B'day suit—haha!
49.7 kg or 109.5 lb.
Just wanted to SEE if it was true what I felt...
Yep, only 66 cm or 26 inches.
Aha—that's WHY my 28 inch low rise jeans from Australia (Last Call by Neiman Marcus) FELL OFF MY HIPS!
Pieter solved it, by adding 3 more holes in his former belt that I used...
Guess the week before Christmas I suffered from Hyperkalemia and for that I've drastically changed my diet.
I knew that I had to limit my potassium intake but since my kidney function went down—it is even more serious to strictly adhere to that!
Hyperkalemia from any cause may produce nausea and vomiting... as published by healthfully.com
Guess that was also why it was affecting my heart, causing palpitations when running up and down the stairs and very much I felt it in Colorado at the high altitude pedestrian bridge...
Pieter said, he's having that problem already very long and that's why he alters his pace and needs frequent rests.
Weakness, dizziness, lightheadedness all have been felt.
Sure, as being advised by the Mayo Clinic—I knew already those 3 points:
Avoid products with added salt.
Choose lower potassium foods.
Limit the amount of protein you eat.
The University of Maryland Medical Center explains that as potassium increases, people are likely to notice muscle aches and cramps, fatigue, weakness, difficulty breathing, irregular heartbeat, nausea...
Mayo Clinic about Kidney Disease Symptoms.
Loss of appetite I've never had and I sure hope not any decreased mental sharpness...! 
All the REST—YES except swelling of feet and ankles.
Such lists are helpful in knowing what to avoid!
No more coffee...!
CHOCOLATES! Good grief... and even salt substitutes!
Sure milk I have not taken for quite a while, only Trader Joe's soy milk as that has the LOWEST percentage of sugar—another thing to watch being diabetes type 2.
With fruits I'm fine—still a lot left to enjoy!

But I'm feeling a LOT BETTER since I've altered my diet.
Not for losing weight but purely to SURVIVE just a little longer...

Maybe this will be helpful for others as well.
My singing with the choir goes better—as I have more breath!
AND on February 1st my housekeeper started and that is super as now I find more time for doing the laundry, the shopping, the cooking + biking!

There is hope and with lots of prayers we have made it this far and even together in a blissful relationship.
May God grant us some more time together—so grateful for everything we lived through and for the fond memories and many friends all over the world!

Related link:
{Cashmere Words of Wisdom & Update} | previous post shortly after Mom died from Chronic Kidney Disease—she had almost 7 years of dialysis...

Monday, September 12, 2022

Notre Dame Basilica of Montréal and Moccaccino at Second Cup Café

 Monday, August 17 of 1998 we continued our walk in Montréal...
Montréal Basilica Notre Dame
Lots of blue inside, very seldom seen
It looks like looking into heaven...
There was noise going on outside as they had scaffolds with nets around, for restoration work.
Impossible for making any outside photos or video.
Wish we could have been there: Luciano Pavarotti – Ave Maria 1978 ←click link for heavenly acoustics from this otherworldly Basilica.
Moccaccino
An aromatic and robust blend,
featuring the deep rich flavours of chocolate and espresso.
Served with whipped cream.
And now it was time for a MOCCACCINO at Second Cup; as is shown in the final part of our video.
It sure was delicious with that chocolate coconut pie.
Those were the days before being diabetic type 2 or having CKD or for Pieter having open heart surgery...
But precious memories!
Hope you enjoyed this and...

Have any of you been there?
Or drank a MOCCACCINO?

Related links:

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